@jerimeemccabe6036
I am a survivor of MRSA. I was infected by a staph infection on my forehead, then I took a regiment of antibiotics, and it laid dormant in my joints. I twisted my ankle and got osteomyelitis, because the MRSA infected my joint from the inside out, from the bone out. I was one of the first people to try zyvox as an experimental drug, and that is one of the main medicines that they now give. I am crippled, I will forever limp like I have a twisted ankle. But, I'm alive and I'm very thankful to everyone who helped me from the surgeons to the nurses and my family . I was according to the doctors 48 hours away from dying from sepsis . But I'm here now, and that was 15 years ago. If you read this, thank you
@EerieAche
Holy crap, I had no idea necrotizing fasciitis was so dangerous and rare. When I was around 11, my grandfather got it. They kept telling us it was "flesh eating virus" and that we had to be careful not to touch him near his wound. It was so difficult because I wanted to help with his wound care, but he had to do it all himself. Now I am amazed at his strength, he never showed us any pain or fear. Amazing video, as always!
@Meeshilin_Man
2:25 Rest in peace Adalia Rose. She was one of the most well known cases of kids with progeria. She did makeup on her YouTube channel and this made me think of her. 🌹
@txylke
I'm flabbergasted that you mentioned Myasthenia Gravis. This autoimmune condition is extremely rare and people never speak about it, so I had 0 hopes in hearing about my condition anywhere in the internet. I've got hospitalized twice and nearly died because of generalised MG, became wheelchair-bound and needed support to literally hold a cup of water. It ruined my life and it's painful how nobody knows it exists. Thank you so much for the awareness. I'm now taking medicine to keep the symptoms at bay and I'm once again self-sufficient, but I still tend to get flare ups that leave me bedridden for hours.
@Dahica26
you know you have something horrible when one of these things happen 1 - You can barely pronounce the name 2 - It has "Necro" on the name 3 - You're told to name the disease
@poppy2764
My wonderful Dad got GBS 7 years ago. He was fully paralysed from the neck down and was on full life support for months. Although he learned to breathe, eat and speak independently again he never regained movement in his body. Sadly he passed away last year due to complications. I miss him every day. Thank you for shedding light on this evil disease. Not many people have heard about it and it's so important to catch symptoms as soon as possible.
@alchemysaga3745
I have EDS, and have also had MRSA— in fact, I had a period over a year where I suffered repeated cases of MRSA due to the school making us sit on the gym floors as part of PE. I also have another condition that is a "sunlight allergy," though it isn't Poryphiria. It doesn’t have as severe of a response, but still means that I have to avoid sunlight. Polymorphic Light Eruptions, or PMLE is what it is called. I also have several other 'rare' issues, so I am overall a genetic catastrophe. I had to apply for disability at 17, and have been legally disabled since I was 22. I would not wish this existence on anyone.
@bigtaco2023
My doctor told me to be really careful and told me not to do any sports in school at all because I have Ehlers-Danos, and my friends make fun of me and call me weak and tell me to go to the gym and go on a bulk, but my doctor told me I will dislocate my joints if I do that. :(
@SarahMadsen-wp9fr
With fatal familial insomnia it’s not insomnia itself that causes death. The cause of death is brain degeneration which causes the insomnia. Additionally all the cases have come from one family.
@trulydivine563
0:10 imagine walking down the street, a man walking covered by cape and hood when it suddenly flies off, he starts screaming in agony his skin blistering as the sunlight hits his face. He runs away down into the subway and disappears into the crowd.
@Noranderreo
I'm a survivor of Guillain-Barré Syndrome, I had to spend 4 months in the hospital, meaning I had to celebrate my birthday, Halloween, Christmas, new years, and had to stay out of school even after I got home, everything felt like hell, every little movement felt like lifting a 300-pound weight on my entire body. Thankfully, I'm doing better, currently at homeschool, going back to my middle school by second semester, and I'm thankful for being alive today. I love the way you described GBS, it's very accurate and relatable to me.
@yorukocultco-leader6169
I once had a friend who got a staph infection from her tampon. It pretty much immediately went to mrsa, and then just as quickly caused her to get toxic shock, which then led to sepsis. She was in the hospital for MONTHS, and when she finally got out, she had been in the hospital laying down for so long that it was hard to walk.
@space-age-bachelorman
my sister has ehlers-danlos syndrome (and i probably have it, just less severely) and the sneezing while sitting too vigorously is so real for her. ehlers-danlos is so much more than strechy skin and loose joints; my sister is almost always fatigued from the condition, gets sick a lot more often then others, loses her appetite, and a lot more. but i appreciate it veing in this series as not a lot of people know about it and it often gets misdiagnosed and/or underdiagnosed
@maxamedali
This is truly the best channel I've come across, consistent upload schedule, simple animation, good voice over and very informative
@Skippedchapters
My mom had GBS. In just a few weeks she was completely paralyzed. It was so awful but with a treatment i can’t remember, she got better, 16 years later she does have a multitude of health problems but is here :)
@GoGicz
As someone who had GBS, yes it also hurt af if you try to move, also have like life long problems cause of it, mainly damaged lungs and nerves dying after going to a shop and back, luckily im not paralyzed and im really grateful for that.
@stayinneverland
My grandma had Necrotizing Fascitis, it has horrible, we were in the countryside and she was doing fine when all of a sudden she had a super strong fever and was in a lot of pain, we rushed to the hospital and she had to be transfered to another one in the city because that one had no resources to take care of her she still has a red mark on her leg, and it all was triggered by a tiny mosquito bite on her foot
@the_fordf150
Fun fact about Fatal Familial Insomnia (4:54) there’s another condition exactly like it called Sporadic Fatal Insomnia (sFI). This does the exact same thing to you as FFI, except it’s not hereditary. It just…happens. The mutation just appears. Your prion just mutates spontaneously for unknown reasons.
@Jacob-nu9pq
For me my biggest fear is Alzheimer’s because you keep forgetting everything until your just a shell
@TheEvaluat0r